Genetics of Rhabdomyosarcoma Registry


About Us


We are inviting families to take part in a research study that will help us better understand the genetic causes of a type of cancer called rhabdomyosarcoma (RMS). To do this, we are studying and comparing genes of people with RMS and genes of their parents and siblings.

Information we learn in this study may help to improve screening for RMS in the future. Our overall goal is to learn more about how changes in DNA sequence (called genetic mutations) affect a person’s chance of developing RMS. This information may one day lead to improved cancer screening tests and maybe prevent cancer from developing in these children.

 Want to learn more? View the links below to learn more about our study.




Your family is eligible to participate if the person diagnosed with rhabdomyosarcoma:

  • Was diagnosed with rhabdomyosarcoma before age 25
  • Is less than or equal to 50 years old at the time of study enrollment
  • Has a diagnosis of embryonal or alveolar rhabdomyosarcoma
  • Can understand and speak English or Spanish

This study is funded by the Cancer Prevention Research Institute of Texas (CPRIT) and Baylor College of Medicine.